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ISCBH Webinars

A SERIES OF THREE ISCBH WEBINARS FOR 2025/2026

This new series covered the following topics:

Achondroplasia & Hypochondroplasia

Hypophosphatasia

Osteogenesis Imperfecta

For each of our webinars, we were excited to be addressing some of the issues that we all need answers to – What about the unmet needs of patients? What if there was no limit to funding?  Where have we been and where are we going?   

We looked into each topic with a futuristic lens… and welcomed plenty of engagement between our moderators and audience!  Together we can work to channel our future efforts to address those unmet needs.

The webinars lasted one hour, and started with a 25 minute talk by our guest speaker, followed by a 35 minute Q&A and discussion session chaired by Professor Leanne Ward and Professor Erik Imel.

ISCBH Members are able to view these webinars again by clicking on the links below – you will need a password to access them.  Please email events@theiscbh.org to request this password.

Webinar Series Convenors:

Erik Imel

Indianapolis, USA

Leanne Ward

Leanne Ward

Ottowa, Canada

'The Future of...' next series of webinars will be announced soon.

'The Future of...' Webinar #1
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'The Future of...' Webinar #2
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'The Future of...' Webinar #3
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Noriyuka Namba

THE FUTURE OF…

Osteogenesis Imperfecta

Professor Noriyuki Namba
Tottori University, Yonago, Japan

Monday 6 April 2026 

20:00-21:00JST
07:00-08:00 EDT
12:00-13:00 BST
13:00-14:00 CEST

CHAIRS: Erik Imel & Leanne Ward

Zoom Link: https://us02web.zoom.us/j/83335212956

 

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Professor Noriyuki Namba

Noriyuki Namba is a pediatric endocrinologist working at Tottori University Hospital. He received his MD and PhD from Okayama University and completed pediatric residency at Okayama University Hospital, followed by a research fellowship in bone cell biology at Washington University in St. Louis. After a pediatric endocrinology fellowship at Okayama University Hospital, he served as assistant/associate professor of pediatrics at Osaka University, acting as principal investigator in chondrocyte biology research. He then served as chief of pediatrics at Osaka Hospital as well as guest associate professor of pediatrics at Osaka University before joining Tottori University as full professor. Currently, his main interest is clinical/translational research concerning patients with disorders of bone and mineral metabolism and is acting as principal investigator in multiple clinical trials including pediatric patients with X-linked hypophosphatemic rickets, hypophosphatasia, and hypochondroplasia. He is a steering committee member of the International Society for Children’s Bone Health (ISCBH) and the congress chair of the 12th International Meeting of Pediatric Endocrinology (IMPE 2027) next year.

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Further details of the ISCBH Winter Webinar are available HERE.

Novo Nordisk is a leading global healthcare company, founded in 1923 and headquartered in Denmark. Our Rare Disease division is focused on generating scientific and technological breakthroughs for people living with a rare disease via the discovery and development of integrated therapeutic solutions and novel indications of established medicines in rare and ultra-rare blood, endocrine and renal disorders. Novo Nordisk employs about 50,800 people in 80 countries out of which 3.300 within rare disease.

WEBSITE

Kyowa Kirin strives to create and deliver novel medicines with life-changing value. As a Japan-based Global Specialty Pharmaceutical Company with a heritage of 70+ years, we apply cutting-edge science including an expertise in antibody research and engineering, to address the needs of patients and society across multiple therapeutic areas including Nephrology, Oncology, Immunology/Allergy and Neurology. Across four regions – Japan, Asia Pacific, North America and EMEA/International – we focus on our purpose, to make people smile, and are united by our shared values of commitment to life, teamwork/Wa*, innovation and integrity.

*Harmony and loop among people.

WEBSITE

Founded in 2007, Ascendis Pharma is applying its innovative TransCon™ technology platform to build a leading, fully integrated biopharma company focused on making a meaningful difference in patients’ lives. Guided by our core values of patients, science and passion, we use our TransCon technologies to fulfill our mission of developing new and potentially best-in-class therapies that address unmet medical needs. Ascendis is headquartered in Copenhagen, Denmark, and has additional facilities in Europe and the United States.

WEBSITE

Inozyme Pharma is a rare disease biopharmaceutical company developing novel therapeutics for the treatment of diseases driven by pathologic mineralization and intimal proliferation which impact the vasculature, soft tissue and skeleton. We are initially focused on developing an enzyme therapy to treat ENPP1 and ABCC6 Deficiencies, rare genetic diseases associated with significant morbidity, mortality, and unmet medical need.

WEBSITE

BioMarin is a world leader in developing and commercializing innovative therapies for rare diseases driven by genetic causes. With a 20-year history, BioMarin remains steadfast to its original mission—to bring new treatments to market that will make a big impact on small patient populations. These conditions are often inherited, difficult to diagnose, progressively debilitating, have few, if any, treatment options, and are usually ignored. Visit www.biomarin.com to learn more.

WEBSITE

Alexion, AstraZeneca Rare Disease, is the group within AstraZeneca focused on rare diseases, created following the 2021 acquisition of Alexion Pharmaceuticals, Inc. As a leader in rare diseases for 30 years, Alexion is focused on serving patients and families affected by rare diseases and devastating conditions through the discovery, development and commercialization of life-changing medicines. Alexion focuses its research efforts on novel molecules and targets in the complement cascade and its development efforts on hematology, nephrology, neurology, metabolic disorders, cardiology and ophthalmology. Headquartered in Boston, Massachusetts, Alexion has offices around the globe and serves patients in more than 50 countries.

WEBSITE